4-everQuist: Testimony in song

Saturday, November 20, 2010

Testimony in song

I went to a nephews baptism today. The opening song was the Hymn " I Know My Redeemer Lives" I made it until the 5th verse. "He lives to silence all my fears, He lives to wipe away my tears, He lives to calm my troubled heart, He lives all blessing to impart." I was sobbing. I have so much fear right now, I cry everyday, Oh how my heart is troubled for my sons troubled heart, and yet I ask for His blessing. I know My Savior knows how I feel right now. He knows my concerns. He knows my pure intent. He knows my deep love for my son. He lives, therefore I live, and my son will live. This is a very hard time for me to be vulnerable. I'm usually the giver, it is humbling to me to receive. This is a very "growing" time for me. To excercise Hope is to exercise Faith. I am begining a week of more growth. I ask for all of our faith to unite for Severin. Give our family the strength to endure this growing season. My Thanks to you.

3 comments:

The Richards FamilyNovember 21, 2010 at 1:09 PM
Angee, Thank you so much for your testimony. Your family and Severin will certainly be in our thoughts and prayers this week. Hugs Jamie
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michelleNovember 22, 2010 at 6:21 PM
Loved that! You are so strong , and have been in my thoughts and prayers this whole day! I hope and pray that sweet little boy will fight through this next phase as well as he did the first. It does take faith, but faith can move mountains just remember that. You/ We have all seen it in these last few months. And Ang you don't always have to be the strong one.We all have to be weak at some point in a trial. And it is okay to give it all back to the lord . If you guys need anything please call me. Lvs Michelle
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Grandma KarenNovember 22, 2010 at 6:28 PM
Angee, I just want you to know that my testimony has grown because of you. Thank you for sharing your fears and thoughts. I think every mother holds fears in her heart over her children, even when they are healthy. This song along with "Come thou fount of every blessing" are my absolute favorite. Aren't we lucky to have the opportunity to "crack" open yet another facet of the Atonement and like you say endure another "growing season." Our thoughts and prayers are with you and your family. We love you.
Karen
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The Day I Became A Heart Mother

One day my world came crashing down,
I'll never be the same.
They told me that my baby was sick.
I thought, "Am I to blame?"
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.
I will not give up on this child.
I will listen to your advise.
I will give my son any chance
No matter what the price.
I will learn all I need
To help my baby thrive.
I'll even use that feeding tube,
My child must survive!
Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
As I accept our fate.
When the monitors beep at night,
it serves as my reminder.
How many parents would love that sound,
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my baby's bed.
I watch him sleep for quite a while,
I bend down and kiss his head.
I cry for the parents whose hearts have broken.
I look to You wondering why?
Oh Lord, I just can't know your ways...
no matter how I try.
And yet, I trust you hold his life,
and guide us through each day.
My mind says savor each moment he's here,
but my heart begs, "PLEASE let him stay!"
From pacing the surgical waiting room,
to sitting by his bed.
From wishing for a good nights sleep,
to learning every med.
From wondering, "Will he be alright?"
to watching him reach out his hands.
With every smile my heart just melts,
despite life's harsh demands.
For all who see that faded line.
I look to them and smile.
You see my child is loved so much,
I would face ANY trial.
That scar I trace with my finger
(It's the door to his beautiful heart).
God must have known how much I'd love him
(Just as He loved him from the start).
A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.
Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day....
When I became a "Heart Mother."
- Stephanie Husted
Mommy to Braeden HLHS

Every Heart Has A Story... This is Severin's

March 4, 2010 19 week ultrasound. We were told something was not normal about our babys heart

April 12,2010 Perinatology confirmed Tricuspid Artesia, Hypoplastic Right Heart Syndrome, Transposition of The Great Arteries

April 20, 2010 Fetal echo confirmed everything that "could" have been wrong with Severins heart, was. We refer to this day as "the holy crap day" Diagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too big and his Aorta is too small.

July 7, 2010 Birth of Severin!

July 13,2010 First Open Heart Surgery

Modified Norwood, Damas-Kaye Stansel, Coarch. repair,BT Shunt, ASD created

Nov. 22, 2010 Pre Glenn Heart Cath

Added to diagnosis: Pulmonary Stenosis, and Aorta has a "twist"

November 24. 2010 Second Open Heart Surgery

remove BT Shunt, Glenn Procedure, replaced 80% of his Pulmonary Artery

April 16, 2012 Heart Cath
Stent placed in Left Pulmonary Artery, due to narrowing. Increasing LPA diameter 3 times the size, and making it "normal" size

November 15, 2012 Fontan Day!

Sev ROCKED the Fontan! He was discharged 5 days post op. We have never looked back. He is healthy, growing, and so dang smart! He sees cardiology yearly. And the rest of the time he is a NORMAL little boy!