4-everQuist: July 2013

Tuesday, July 30, 2013

Washington Trip- Part Four

Sevie and Uncle Jim

Seriously can this kid get any cutier, really?

Monday, July 29, 2013

Washington Trip Part Three- Uncle Bobs Beach

That is what the kids call it, "Uncle Bobs Beach/Ocean" They love their Uncle Bob!

We have grown Beach Bums!!! They thrive at the beach!

Washington Trip Part Two- Birch Bay

Two little boys+rocks+water= tons of fun!!!

Best cousin buds Sevie and Ethan

Johnathen "practicing" his skills with his new wrist rocket

Neleh finds sea shells wherever she goes- can she get any cuter?

Washington Trip Part One- Highland Games

Johnathen trying his luck with a mini caber toss

Sevie loved this ginormous cow

Neleh just giggled the whole time she sat on the tractor

Uncle Jim taught a fiddling class in the old barn, Aunt Ry cooked yummy food and we met Uncle Wils family and friends

We have a BOBCAT in the family

What I have an 8 year old? He is old enough for Cub Scouts? Now he wants to earn his Bobcat? Wow and so it begins, the life of a scouter....

Neleh's Preschool Graduation! Miss Becky's Bumblebee Preschool -May 2013

Neleh and Miss Becky

Neleh and her best pal Kellan

last but NOT least this is the infamous "love" in Neleh's preschool life; Beckham, and his moms says this is his "trying to smile" face

Intermountain Healing Hearts 5K - May 18,2013

I was not able to run this year because I needed to "run" the behind the scenes, but Leesa and Justin came out to support. We decided next year to make a bigger "Team Super Severin" And yes it POURED rain on us and I stood at the finish line taking everyone's bib numbers off. Good Day for our Heart Friends.

Morgan earns her CNA Certificate from MATC-May 2013

Disneyland!!!

We decided to make a tradition of taking the kids to Disneyland for their 8th Birthday, and spend some one on one time with Mom and Dad. Dad was working in LasVegas so we met up with him and finished our drive to California. We ran around both parks, worked in a beach day and headed home!

Johnathen's Baptism Day April 13, 2013

What a handsome Boy!!! One of my fellow Heart Mamas did a photo shoot with Johnathen. He was so cute and photogenic

Johnathen was the only one being baptized from our Ward so it was HIS day. He choose his speakers, and songs.

The Day I Became A Heart Mother

One day my world came crashing down,
I'll never be the same.
They told me that my baby was sick.
I thought, "Am I to blame?"
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.
I will not give up on this child.
I will listen to your advise.
I will give my son any chance
No matter what the price.
I will learn all I need
To help my baby thrive.
I'll even use that feeding tube,
My child must survive!
Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
As I accept our fate.
When the monitors beep at night,
it serves as my reminder.
How many parents would love that sound,
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my baby's bed.
I watch him sleep for quite a while,
I bend down and kiss his head.
I cry for the parents whose hearts have broken.
I look to You wondering why?
Oh Lord, I just can't know your ways...
no matter how I try.
And yet, I trust you hold his life,
and guide us through each day.
My mind says savor each moment he's here,
but my heart begs, "PLEASE let him stay!"
From pacing the surgical waiting room,
to sitting by his bed.
From wishing for a good nights sleep,
to learning every med.
From wondering, "Will he be alright?"
to watching him reach out his hands.
With every smile my heart just melts,
despite life's harsh demands.
For all who see that faded line.
I look to them and smile.
You see my child is loved so much,
I would face ANY trial.
That scar I trace with my finger
(It's the door to his beautiful heart).
God must have known how much I'd love him
(Just as He loved him from the start).
A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.
Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day....
When I became a "Heart Mother."
- Stephanie Husted
Mommy to Braeden HLHS

Every Heart Has A Story... This is Severin's

March 4, 2010 19 week ultrasound. We were told something was not normal about our babys heart

April 12,2010 Perinatology confirmed Tricuspid Artesia, Hypoplastic Right Heart Syndrome, Transposition of The Great Arteries

April 20, 2010 Fetal echo confirmed everything that "could" have been wrong with Severins heart, was. We refer to this day as "the holy crap day" Diagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too big and his Aorta is too small.

July 7, 2010 Birth of Severin!

July 13,2010 First Open Heart Surgery

Modified Norwood, Damas-Kaye Stansel, Coarch. repair,BT Shunt, ASD created

Nov. 22, 2010 Pre Glenn Heart Cath

Added to diagnosis: Pulmonary Stenosis, and Aorta has a "twist"

November 24. 2010 Second Open Heart Surgery

remove BT Shunt, Glenn Procedure, replaced 80% of his Pulmonary Artery

April 16, 2012 Heart Cath
Stent placed in Left Pulmonary Artery, due to narrowing. Increasing LPA diameter 3 times the size, and making it "normal" size

November 15, 2012 Fontan Day!

Sev ROCKED the Fontan! He was discharged 5 days post op. We have never looked back. He is healthy, growing, and so dang smart! He sees cardiology yearly. And the rest of the time he is a NORMAL little boy!