So Christmas brought us the sickies. J. has pneumonia, S. has an ear infection,cough, snotty nose and is back on oxygen 24/7, N. escaped with the least bad cough and snotty nose, I have some bronchitis somethin somethin. Needless to say I am thankful Santa brought us a Wii. It has provided some good couch time entertainment.
Here is the funny story for the day: I am NOT a gamer, Johnathen likes to take full advantage of that fact. He continuously "forgets" to tell me how to pay the game. We are playing Mario Kart- at my skill level. I'm doing pretty good. Just tailing Johnathen. Who by the way is Princess Peach driving a motorcyle, because he likes her outfit when she drives the motorcycle. Then we start talking trash. And in the final seconds of the game I PASS JOHNATHEN!!!! Ok so I was 9th place and he was 10th but the most important part is I BEAT HIM!! Idon't know if I will ever let him forget it. All the games played I will remind him of this one and I'm sure only time I beat him.
Friday, December 30, 2011
Thursday, December 29, 2011
First lost tooth!
December 8. Johnathen was just brushing his teeth and it just fell out! Then Mom had to hurry and make a ToothFairy tooth pillow!
A Very Merry "Quist"mas Christmas
Here are a few of their favorite things- not pictured the Wii, which is the MOST favorite thing
Johnathen and his BB gun
Neleh gets her very own scriptures
Morgan got a framed picture of the Draper Temple- that is the temple she was sealed to us in
Severin just wanted the candy canes
Johnathen and his BB gun
Neleh gets her very own scriptures
Morgan got a framed picture of the Draper Temple- that is the temple she was sealed to us in
Severin just wanted the candy canes
Q&A & soultion
How did Severin get a bruise on his (fill in the blank with any body part)????
The ANSWER:
The only SOLUTION: push in everything- even though he does know how to pull it out- it just makes him work harder and buys me some time to get to him.
then he is smooshed, that really ticks him off. He is such a climber! Notice he is in the same clothes in every picture. I would get him down and he would find something else to get into. No wonder I have given up on making dinner! Fun Toddler Days!
The ANSWER:
The only SOLUTION: push in everything- even though he does know how to pull it out- it just makes him work harder and buys me some time to get to him.
then he is smooshed, that really ticks him off. He is such a climber! Notice he is in the same clothes in every picture. I would get him down and he would find something else to get into. No wonder I have given up on making dinner! Fun Toddler Days!
Monday, December 12, 2011
Cardiology Appointment Dec. 12, 2011 The Blessings are abound!!!
We were able to go to Cardio clinic in Riverton today (blessing #1) My amazingly awesome cousin, Jeni, watched Neleh for me. (B#2) When I dropped Neleh off at her house in Lehi, of course I was running a little behind, Jen had printed driving directions for me so I could get to the hospital in 21 mins. (B#3) She is so great! Not to mention she just had extensive dental work done and her wisdom teeth pulled 10 days ago!!! It's hard not to get a little teary eyed when someone sacrifices so much for you. A million Thanks to YOU Jen! We made it on time to the clinic. (B#4) I talked to Dr.Su a few weeks ago so I was prepared for what he might say. (B#5) Severin's heart is starting to fail again... He needs the Fontan proceedure.
I knew this was a 3 part surgery. I knew the day would come. I know Severin must endure another open heart surgery to survive as long as he can. We have had a really great year, with a normal baby. I allowed my worries to be pushed to the very back darkess corner of my mind. And now here they come forward with a blazing force!
Here are the statistics from the appointment, and the plan. Severin did not like the chest Xray, but all was clear.(B#6) Severin weighs 23.7 lbs,(B#7) Blood pressures are great,(B#8)Oxygen saturations 68% at 1st check then 75%-80% after he calmed down some more. I had a gut feeling he was going to be back on O2 all the time. Dr. Su said he is ok- for now- just to be on O2 at night (B#9) Do you know how hard it is to keep a nasal cannula on an active toddler? eeekk! Dr. Su thinks his low saturations are caused by collaterals. They are common in heart kids. It is when the body makes more blood vessels to try to make better blood flow, for Severin his heart is trying to make better oxygen saturations. The body is so amazing at compensating. (B#10) The bummer side is they are not good vessels. They have a negative affect on him and they need to be "coiled" off. Like when you prune a branch or vine to make the rest of the plant grow better. They can coil the collaterals during his heart cath. We will see Dr. Su in 3 months. At that time we will check his oxygen saturations and weight. Then schedule him for his heart cath. This will also be a pre Fontan surgery cath. We expect Severin to need his next open heart surgery in August 2012. So for the next 6 ish months Severin has "goals" to meet again. He needs to be at least 30 pounds for surgery. I really want to get some solid communication skills; signing or verbal. He will need to tell us what is going on, how he feels, understand what we are saying, ect. On the way home he was telling knock knock jokes with Neleh. He was repeating what she had said to me. S-notnot,N-whos there,S-nana. You know the one. They keep saying banana until finally they say orange, you say: orange who, they say: orange you glad I didn't say banana again! Overall I think Severin is doing pretty good, and will be on target for the August surgery date.(B#11&12) I am so thankful for my son being born at a time when the Lord has blessed us with knowledge.(B#13) These knowledgable Drs. are so close to our home, and they know what the next step is to sustain his life.(B# 14&15) As you can see my cup runneth over! We are so very blessed!
I knew this was a 3 part surgery. I knew the day would come. I know Severin must endure another open heart surgery to survive as long as he can. We have had a really great year, with a normal baby. I allowed my worries to be pushed to the very back darkess corner of my mind. And now here they come forward with a blazing force!
Here are the statistics from the appointment, and the plan. Severin did not like the chest Xray, but all was clear.(B#6) Severin weighs 23.7 lbs,(B#7) Blood pressures are great,(B#8)Oxygen saturations 68% at 1st check then 75%-80% after he calmed down some more. I had a gut feeling he was going to be back on O2 all the time. Dr. Su said he is ok- for now- just to be on O2 at night (B#9) Do you know how hard it is to keep a nasal cannula on an active toddler? eeekk! Dr. Su thinks his low saturations are caused by collaterals. They are common in heart kids. It is when the body makes more blood vessels to try to make better blood flow, for Severin his heart is trying to make better oxygen saturations. The body is so amazing at compensating. (B#10) The bummer side is they are not good vessels. They have a negative affect on him and they need to be "coiled" off. Like when you prune a branch or vine to make the rest of the plant grow better. They can coil the collaterals during his heart cath. We will see Dr. Su in 3 months. At that time we will check his oxygen saturations and weight. Then schedule him for his heart cath. This will also be a pre Fontan surgery cath. We expect Severin to need his next open heart surgery in August 2012. So for the next 6 ish months Severin has "goals" to meet again. He needs to be at least 30 pounds for surgery. I really want to get some solid communication skills; signing or verbal. He will need to tell us what is going on, how he feels, understand what we are saying, ect. On the way home he was telling knock knock jokes with Neleh. He was repeating what she had said to me. S-notnot,N-whos there,S-nana. You know the one. They keep saying banana until finally they say orange, you say: orange who, they say: orange you glad I didn't say banana again! Overall I think Severin is doing pretty good, and will be on target for the August surgery date.(B#11&12) I am so thankful for my son being born at a time when the Lord has blessed us with knowledge.(B#13) These knowledgable Drs. are so close to our home, and they know what the next step is to sustain his life.(B# 14&15) As you can see my cup runneth over! We are so very blessed!
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