Monday, October 31, 2011

Happy Halloween!

Severin the OWL in the tree- he is really liking the candy idea, and the people at the door
Morgan as ... I have no idea. She is trick-or-treating for PCMC- her school club FCCLA donates the candyJohnathen as a vampire (NOT Dracula!)- I don't like him looking so scary, but he thinks its pretty cool
Neleh as the Fairy- this is her "hurry up mom and take the stupid picture I have candy waiting for me" look

Tuesday, October 11, 2011

15 month well baby check Oct.10, 2011

Severin had pretty good numbers. He was consistant with last visit.
Height: 30 1/4 inches-25 %
Weight: 21.3-10%
The thing we do not want to see is a dip in weight. That is an indicator his heart is not doing well. Severin has been having trouble maintaining his SATS lately. We went to Gma Sue & Gpa Freds for an overnight, and he kept turning blue. He is doing it at home too. Sometimes this is just how his blood is mixing. Sometimes his heart pumps a little more of the unoxygenated blood. Sometimes it is an indicator that his is getting sick. Sometimes it is just because he is cold. I know lots of "sometimes". But thankfully I have the past year to pull from. It makes me only slightly less crazy. Severin had his immunizations and flu shot. He always fevers and is SUPER grumpy for the next 48 hours. So last night was not the most restful for either one of us. Hopefully we can squeeze in a good nap!
As the cold weather sets in, we again ask for Severins sake, if you ARE sick, HAVE been sick, OR around anyone who has been sick in the past WEEK, Sevie must stay away. So let us know. When most people are getting excited for the Holiday Season we are reminded that this is the begining of the "lock down" season for us. For this guy to get sick it is a one way ticket to ICU, and chances of him surviving something like RSV is slim. So please, please be mindful of our little one this holiday season.
All our Love!

Sunday, October 9, 2011

Saturday, October 8, 2011

Good -bye Mary. See you in 3 months!



This is Mary. She is the Occupational Therapist with the early intervention program for our school district, Kids Who Count.

We can not say how much we LOVE Mary! She came into Severins life right before his second surgery. We worked on feeding, strength, and mobility- as much as a 4 month old can. The real challenge came after surgery. Severin could sit up but not bend his legs, reach, bend at his waist, rotate from side to side. He hated tummy time even on my chest. He skipped rolling all together. Mary had great ideas to get Severin on task developmentally. As you all know he did it. The sad news is once you are not in "need" anymore you go to a tracking program. So OT was once weekly visits now is every 3 months. Severin is doing AWESOME!!! I can not thank Mary enough for her insight and experience to get my guy to where his is.

Thursday, October 6, 2011