Sorry no cute picts of my boy. I knew we had to be there for an hour before our echo was scheduled... I did not however plan on them being an hour behind schedule. I did not bring my bag-o-wonder. I had to entertain a nearly naked diapie boy for 2 hours with what I had in my purse. He couldn't eat or drink anything so there when the majority of the entertainment. He kept saying " ona wink", he was so thirsty. I tried to wake him up and give him a bottle before he had to go NPO, but he'd rather sleep. So by the time the NP who was doing the sedation came in Sev had bows in his hair, and threw a plastic cockroach at her. He went through an entire bottle of bubbles- thanks Tiff! We love Tiff she is a CHDer herself and she works in Cardiology Clinic. I had to chase him around the clinic. The wall is painted with fishies and they had the Halloween decor up. He had to go see the "fifhs" and "bidies" and pumpkin- I really have no idea why he can say pumpkin but not fish or spiders. He was so brave for the IV. It was really hard for me. He kept saying "don't mom" and looking at me with his pleading eyes. We had the whole IV Team singing ABC's and Twinkle, twinkle little star. They were awesome! As hard as it is for me to see him go through painful things I will never leave him alone. We both cry, and hug each other tight after its all done. The echo was great. He has had some decreased function in his left ventricle since his Glen. But it is not worse, and his Glen has great flow. So we are good for the 15th. He MUST stay healthy. He already has a cough and runny nose that will hopefully clear up over the next month.
Afterwards they took us up to recovery in same day surgery. We had kids all around us who had had different surgeries. After about a 1/2 hour of me holding Sev, and drinking a "flushie" and "brite", he perked right up. He wanted me to push him for a ride in his bed again. His nurse told him he could have a wagon ride when it was time to go home. Then it was "wagon, Sev, ride, now" with his finger pointing at anyone who would listen. He discovered the TV remote. He found his way to a football game. He shouted" go, football,go!" and "run, football guys, go!"I guess he is a fan? Sometimes he would say "mom" over and over and over just to hear me say "yes" or " what", I was standing right by him. Then he saw a nurse giving her patient some apple juice in a sippy cup. Oh you bet next time his Mary came by he let her know he wanted "juice, sippy, now". He wanted to know everyone's name, and when we left he said bye to everyone by name. He is a charmer, and everyone who meets him loves him.
Since being home his sats have been in the toilet. His lungs are clear. But I had him on 1.5 liters of O2 last night to keep him in the 70s. I'm going to call Cardiology about that one.
