4-everQuist: September 2015

Friday, September 4, 2015

March 22, 2014 Nate-O-Man gets baptized

Nate has always been the 'other one' in our family. His mom (Thom's sister Emilee) introduced Thom and I and wanted us to date. We arrived at the hospital moments after he was born. He and Thom have always had a very strong bond. So when he asked his Uncle Thom to baptize him it was an Honor.

Oh electronics, electronics. How do we love thee....

Super cute, now GO TO BED!!!

Hey Ang, What do you DO all day?

'nuff said...

If you know me at all......

then you know how I feel about Llamas!!!

My friend sent me this and it cheers me up more then I can ever describe :)

Johnathens Baseball Team The Braves! 2014

Thom was his Coach- and needed blood pressure meds after this season

My art work on the signage WOOT WOOT!

Seriously does it get anymore adorable then this kid? Sorry that is not very "manly" but he is so handsome! And a serious ball player/catcher- ps yes he wears the head gear

Austin's Army

My Nephew Austin was diagnosed in 2008 with Hemoangieoma and in 2012 the diagnosis was changed to Hemoangieoma vascular malformation in his wrist and fore arm. The only place that would treatments on him to reduce the tumor size was at the Sweddish Hospital in CO. Under Dr.Yakes and staff wonderful care and 13 procedures, they have been able to reduce his tumor. This was an expensive trip and treatment. But as we well know NOTHING is to much for our kids. We wear our shirts to support him on every treatment day.

Check out their family blog at: http://thelerwillherd.blogspot.com/

NSP Lagoon Day take TWO Aug 2014

Because I was in charge of IHH Family Heart camp this year, I didn't get to stay at Lagoon day very long. So we used the bounce back and then I was able to spend the whole day with the family.

Halloween 2014

Severin the Bat

Neleh- The Princess- this was a Princess costume I wore!

Johnathen-The Army Soldier

Trick -OR- Treating is so tiring.....

Sometimes you just have to lay down and snuggle with your loot!

The Day I Became A Heart Mother

One day my world came crashing down,
I'll never be the same.
They told me that my baby was sick.
I thought, "Am I to blame?"
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.
I will not give up on this child.
I will listen to your advise.
I will give my son any chance
No matter what the price.
I will learn all I need
To help my baby thrive.
I'll even use that feeding tube,
My child must survive!
Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
As I accept our fate.
When the monitors beep at night,
it serves as my reminder.
How many parents would love that sound,
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my baby's bed.
I watch him sleep for quite a while,
I bend down and kiss his head.
I cry for the parents whose hearts have broken.
I look to You wondering why?
Oh Lord, I just can't know your ways...
no matter how I try.
And yet, I trust you hold his life,
and guide us through each day.
My mind says savor each moment he's here,
but my heart begs, "PLEASE let him stay!"
From pacing the surgical waiting room,
to sitting by his bed.
From wishing for a good nights sleep,
to learning every med.
From wondering, "Will he be alright?"
to watching him reach out his hands.
With every smile my heart just melts,
despite life's harsh demands.
For all who see that faded line.
I look to them and smile.
You see my child is loved so much,
I would face ANY trial.
That scar I trace with my finger
(It's the door to his beautiful heart).
God must have known how much I'd love him
(Just as He loved him from the start).
A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.
Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day....
When I became a "Heart Mother."
- Stephanie Husted
Mommy to Braeden HLHS

Every Heart Has A Story... This is Severin's

March 4, 2010 19 week ultrasound. We were told something was not normal about our babys heart

April 12,2010 Perinatology confirmed Tricuspid Artesia, Hypoplastic Right Heart Syndrome, Transposition of The Great Arteries

April 20, 2010 Fetal echo confirmed everything that "could" have been wrong with Severins heart, was. We refer to this day as "the holy crap day" Diagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too big and his Aorta is too small.

July 7, 2010 Birth of Severin!

July 13,2010 First Open Heart Surgery

Modified Norwood, Damas-Kaye Stansel, Coarch. repair,BT Shunt, ASD created

Nov. 22, 2010 Pre Glenn Heart Cath

Added to diagnosis: Pulmonary Stenosis, and Aorta has a "twist"

November 24. 2010 Second Open Heart Surgery

remove BT Shunt, Glenn Procedure, replaced 80% of his Pulmonary Artery

April 16, 2012 Heart Cath
Stent placed in Left Pulmonary Artery, due to narrowing. Increasing LPA diameter 3 times the size, and making it "normal" size

November 15, 2012 Fontan Day!

Sev ROCKED the Fontan! He was discharged 5 days post op. We have never looked back. He is healthy, growing, and so dang smart! He sees cardiology yearly. And the rest of the time he is a NORMAL little boy!