Jammies and fuzzy slippers

We have a tradition of getting new jammies and fuzzy socks/slippers for hospital stays. Fortunately, we did not need to stay overnight, but we still wanted to wear our new jammies at home today. Lots of PlayStation games and homework today. We channeled the good vibes of Grandpa Quist and got Sev some old man jammies ;)

 

Home!

 After a 3.5 hour drive home through traffic, rain and snow, we are DONE. We stopped by McDonalds for an Oreo McFlurry for him, he ended up eating two cheeseburgers, chicken nuggets, fries, a McFlurry, and a Sprite. We jammed out to some music, picked up a PlayStation from Austin and Morgan- Austin generously let him borrow for his recovery, kept Carmen for a sleep over, and the Dude passed out. We have had a long day. Grateful to be home together, safe, and healing. 

Peace Out!

The narcan made the difference, Sev was able to hold down a few crackers and sprite, Chest Xray looked great, we are cleared to go home. I asked for a 'normal face' this is what I get. So Thankful everything went smooth and 'according to the plan' today. You know how I like a good plan! 
 

Still barfy, but more Awake

 

Sev has not been able to hold any fluids down, The Anesthesiologist came by and tried some narcan to reverse any remaining fentanyl. Next up is a chest X-ray. and holding down fluids...

The IV was a little rough

Two tries and the IV Magician couldn't even get it, the anesthesiologist had to place one in the Cath lab

 

On the other side of the Heart Cath

Lots of nausea, throwing up, chest pressure, headache

Flawless Heart Cath, Perfect Pressures, opened his stent from 10 to 14, He has a good crappy heart. Fenstration is still open a tiny bit-hence the good O2 Saturations. Hopefully this will be the tune up his heart needs to give him back his energy.

 

He is in the Cath Lab

 

It is a little different handing him off to the Anesthesiologist. He didn't even try to ride in a Coup Car

Hops right in like it is no big deal. Dr. Gray says it will be a few hours. 

Back to Primary Children's

 

Sev is doing the Freddy Frog Face

Cute Jammies! Sev is 5'7" and weights 100 pounds!!

A little tune -up

 Hello, Blog family! We have been enjoying our heart-stable status here for 12 years, but alas, the time has come for a Heart Cath. It is scheduled for Tuesday, November 26. We ask you to unite with us in prayers, good vibes, happy thoughts and shouts to the universe for Sevs's health, safety, and the keen skills of those performing his case.

Sev has been feeling some symptoms of his bummed heart for about a year. I have been letting him take ownership of his health more and more over the past few years. This is very hard for a mom! But I know it will benefit him in the long run, it is HIS body. I watched him slow down, waiting for him to decide it was time to get checked out. We were able to move his yearly cardiology appointment from Dec to Oct. As Sev and Dr. Su discussed how he is feeling, echo, etc it was decided he would benefit from going to the cath lab for a little tune-up. When Sev was 2 he had a stent placed in his left pulmonary artery. He has since outgrown this stent. Sev was visibly nervous, and hesitant, Dr. Su says 'think about it and text me later' Always so impressed with his Drs. Sev did a lot of research, we had a lot of frank conversations, and looking at the schedule he decided the week of Thanksgiving break would be the best time. Let's just note Thanksgiving has been his traditional time to be in the hospital. The Glenn, Heart Cath, The Fontan... The goal of this procedure is to open or replace the stent, to gather solid data about his heart valve anatomy, his synthetic plumbing, and the pressures in his heart. We hope this will give him back his energy, blood flow, and oxygenation. We will have a sleepover at the hospital for observation. Needless to say, this brings up a lot of emotions for all of us, we are exercising grace and patience with each other as we navigate this new what-if.