He is being so brave about the EKG stickers.
Look at that lip
In 2 plus years going to Cardiology appointments I forgot his journal this time. So I didn't have my list of questions or anywhere to write his vitals.
In 2 plus years going to Cardiology appointments I forgot his journal this time. So I didn't have my list of questions or anywhere to write his vitals. 
He is so very helpful by holding up his shorts for the blood pressure cuff. He sat so good through all FOUR blood pressures.
He lifted up his shirt so Dr. Su could listen to his heart
So the appointment confirmed what I already knew. It is really nice not to be blind sighted anymore. Severin's heart is telling us it is time for the Fontan. He needs a sedated echo in October, and his surgery will be in November. Now I await that dreaded (but necessary) call from Linda. Dr. Su would like him to gain as much as he can until then. He is doing great all things considered, and I would expect nothing less from this little SuperHERO.
Hi Severin
ReplyDeleteMy name is Jenna. You are a brave courageous fighter. you are a special miracle from god, a gift from above, earthly angel,and you are a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.
I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.
I wrote this poem
Each of us are Special
Each of us different,
No one is the same
Each of are us are unique in our own way,
Those of us who have challenges, we smile through our day.
Those who of us who have challenges, we smile through our day.
It doesn't matter what others say
we are special anyway.
What is forty feet and sings? the school chior
http://www.miraclechamp.webs.com