A cryin' shame

It's a shame hair this good is on a boy. Auntie Leesa came over and the pigtails just happened. Everytime I had the camera out to get a picture he would fuss. He must know we will use it for future blackmail. Oh he is so fun

No more OT! 10/27

Severin has been officially discharged for Occupational Therapy. He weighs 12.12. She thinks his development, muscle tone, weight gain, and feeding is all up to speed. We will miss Shauna but if he needs any OT after the next surgery she will come back.

Whew Hoo its not measles!

So when I got to Primaries yesterday Severin had a red dot rash on his face. I thought it must have been too hot for him in the car. It didn't get worse throughout the transfusion. Five Cardiologists and four Nurses looked at it, no one was too concerned. He still had it this morning and it looked like it was getting worse. When I Googled measles it said eye infection was a symptom - Severins right eye has been runny and a little gooey for a week. CRAP measles !? I called the Ped. and took him in. Its his reaction to a virus. He will probably always break out in hives when he has a virus. It doesn't seem to be bothering him but he is getting Benedryl. I do not feel like I can assume anything is "normal" with this kid. Oh and the Peds scale said he was 12.6 so I think it is safe to say he is over 12 pounds.

Another blood transfusion

My day started with a call from the Cardiologist at 8:30 am after another very UNrestful night sleep- Severin can not maintain his O2 sats if I paid him to. Dr. Su said Severin need to go to Primaries for another blood transfusion. Let me back up to his cardio appointment yesterday. According to their scale Severin weights 12.3 and is 24 inches long YEAH! He has went to 1 liter of oxygen as of Saturday, and even with that his sats were only 77%. Dr. Su wanted to know why. So Severin had an echo, this made Thom really upset because he wants to see his heart and this is the second one he has missed. He has some narrowing in his Pulmonary Artery where his BT Shunt connects so it is probably scar tissue- totally norrmal and not a big deal because after his next surgery it won't even matter, the BT Shunt will be removed and the PA will be replumbed. Which by the way his tentive surgery date is the end of November. We go back to the "thinking chair" maybe it is his red blood cells. Maybe they have not completely recovered from the circumcision blood loss. It has been six weeks since then. The red blood cells are the trucks that carry the oxygenated blood around the body, so an increased oxygen need can mean the trucks are down in numbers. We decided to do a CBC blood draw. That brings me back to today. Severins hematocrit (red blood cells) was 35 it was 40 six weeks ago when we left after his 2 transfusions. Thankfully he only needed one unit, and we were able to go to the R.T.U (Rapid Treatment Unit) and now we are back home. Now his count is 51 which is plenty high enough. Now he just has post traumatic stress to deal with. It is still a wonder where the red blood cells ran off to. Hopefully he will start making his own now. The CBC did prove he is working it is just not fast enough. The goal is to get him off oxygen before his next surgery date. Well I must go and pretend to sleep before my night job starts in an hour. Remind me later why I love being a Mom....

Just chillaxin for the echo

Severin was cracking me up. He is laying on a rolled up towel under his shoulders. They needed to get an angled view from the top. He just sucked on his bink, and fell asleep. Who says he needs sedation for his echo.

Chubbies!!!

Oh I love his chubby belly and thighs! I could just eat him up!

Severins "Going Home Outfit"

We did family pictures today. Severin was crying while I was getting him dressed. The thought came to me, when I bought this outfit I said it would be his going home outfit. I would take him home from the hospital in it ( I thought he would be there a long time) or he would wear it when he went home to our Heavenly Father. This is the only item I would allow myself to have for him before he was born. I am overjoyed to dress my screaming son in his head-to-toe OshKosh. He is such a gift to us. The faith of so many gave us this time with him. Thank you to all of you!