Brothers...

J: Sev get your feet off me! as he has his feet on his bare back under his shirt
S: But you are so warm....

Heart kid  problems, cold feet...
HAHA!

Heart Month Day #29 Teach **Bonus DAY!!!!

Lucky this year Heart Month has an extra day!
Severin has taught us how to live in the moment, FOR the moment. He has taught us to Hope. He has taught us to see the good in every situation. He has taught us to have Faith. He has taught us to fight. He has taught us to pray. He has taught us to never give up. He taught me a different way to parent. This summer he has been asked to come and TEACH other parents with me in the Parent Hour at the Hospital. He is a natural in front of a crowd. Who knows maybe someday we will be voting Severin for President.

Heart Month Day #28 Love

So much LOVE! He began with LOVE. Everyone who has met him LOVES him. This boy brings the excitement to everywhere he goes. He LOVES everything. I ask him to pick one thing he LOVES the most, he can't decide. After much thought he says 'playing'! I hope he always has a LOVE of life!

Heart Month Day #27 Joy

JOY...
Every night when this little Monster finally stops and falls asleep. I am reminded of the journey we are on, His journey. That is joy. Joy for one . more. day.

Heart Month Day #26 Inspiration

Leave a comment if Severins Heart Journey has Inspired you in any way...
I have had the opportunity to meet many Adult CHDers. One is Michael. We met through a guy Morgan when on a date with. You may remember Michael from the blog post September 28, 2011 titled "our new heart hero- Michael" Michael changed me. He changed how I looked at Severin. I stopped looking at the "what ifs" and started seeing the "what now". My biggest fear is that I/We made the wrong decision for Severin's life. I didn't want him to ever feel like his life was a waste. Michael answered that. He never felt like his burden was a waste of his life. Michael has gone to Heaven. I never posted about that day. It is too sacred to me. He continued to inspire me upon his death, at his funeral, and even still on quiet days. He will always be in my heart.

Heart Month Day #25 Music

Music, Mewzick, Moosick.... The music that best fits is on Severin's First Birthday video, but of course I can't find it to post! But this is another fav https://www.youtube.com/watch?v=E9OcA8BM5PY

Heart Month Day #24 Strength

I know I can survive for a week with zero sleep. I know I can survive for months with minimal sleep.
My Strength came from somewhere.
That somewhere was the prayers from others, the service that was given to our family, the love we have for our son, the FIGHT he has, his zeal for life.
We are STRONG when we have to be.