Monday, April 2, 2012
Cardiology Appointment March 27, 2012
Cardiology was not bad but not good either. I'm not feeling to perky about this. Severin cried for his chest xray, I even tried to play peek-a-boo with him but it didn't work. By the time we rode the elevator to the 3rd floor Cardio Clinic and hooked him up to the pulse ox he was still sating 58%. Yep that SUCKS! He made it up to 71% after the nurse left. He weighed in at 24 pounds, yet another sucky bit o news. He has only gained 2 pounds in 3 months. Dr. Su didn't feel too worried about this. He thinks he is just running, playing, and being a normal little boy. Yes he is. He plays outside every chance he gets, and runs up and down the street with the other kids. But, I want him to play hard AND gain weight. So I have started giving him pedisure, ensure, carnation instant breakfast, you get the idea anything full of calories! We talked about the next move, a Heart Cath. I wanted the cath sooner then later. My hope is they can coil his collaterals, or put in a stent if his pulmonary artery has narrowed- he had 80% of his PA replaced in his last surgery. I just want him to get some good oxygen saturations, and gain some weight. So the Cath is scheduled for April 16. I have to hand my baby over to them. He will probably stay the night, and so will I. When I talked to Dr. Su about the family activities this summer and when the best time for surgery would be, I told him about Thom being gone in Sept. He wanted to know why I wasn't going with him. I said "have you met my son?!!!" Then he talked to me for the next 10 mins about how important it is for Thom and I to have a vacation, reassuring me how stable Severin is, and that now is a good time to go together. This isn't the first time he has mentioned strengthening our marriage. I do not go in squawking about my crappy relationship, because we do not have a crappy relationship. I am, however, thankful that he is willing to treat the whole family. Maybe Thom and I will go on a small vacation. For now we will "wait and see" what the next step is for Severin.
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A gee thanks for sharing your experiences and advice in the heart world. They really help me. I hope you and Thom can get that vacation!
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