4-everQuist: CROUP !!???!!

Friday, March 25, 2011

CROUP !!???!!

Severin woke up at 2am and couldn't breathe. He had a super "barky" cough. I know and I'm just going to say it, so those of you with virgin eyes, now is the time to advert your eyes...ok. SERIOUSLY WHAT THE HELL?! I have been indoors since October! How was my baby exposed to the croup? I have been so protective. I was just telling all my Bunco Ladies last night the good place we are in with him. I wanted to be hospital free this year. I'm not going to count the ER. I know this is just one of those regular childhood illnesses. He is a heart kid so my mind wanders. Is it his pulmonary veins, pulmonary artery, enlarged heart, diaphram, heart failure...on and on. We have tried so hard. My kids wash and wash and change clothes. They haven't had friends over for months. We just barely have been crawling out of our hole, and then this, SLAM! For the past three months he gets a cough, snotty nose, gooey eyes right before his Synagist is due. So on Weds. when he started with a snotty nose I just thought here we go again, his Synagist is due on Monday. It quickly turned into something more. Thankfully the ER Doc. at UVRMC was willing to treat Severin. If you remember back when his NJ tube was clogged they wanted NOTHING to do with him. The staff adored him, and he did all of his tricks for them to ooo and ahhh. The miracle of steroids and we were on our way. Boy do I need a nap!

5 comments:

The Richards FamilyMarch 28, 2011 at 1:08 PM
I hope that Severin is doing better! I think of you often. Hugs, Jamie
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UnknownApril 1, 2011 at 8:07 AM
I couldn't agree more my friend, WHAT THE HELL???? Hope you guys are doing ok. Miss you!!
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~Jason and Heidi~April 1, 2011 at 11:53 PM
I am soooo sorry! Seriously!!! I hate croup. I have spent my fair share of nights on the poarch wrapped in a blankie holding a little one. Yep! Scary!
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HeidiApril 3, 2011 at 4:15 PM
Seriously... The germs find their way in- mischevious little things. Glad the ER doc wasn't freaked out by the below 80 oxygen saturations. Here's to a happy and HEALTHY spring. And get some sleep would ya??? hahaha
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Connor my little frogApril 3, 2011 at 10:55 PM
I know the more we stay in doors the more the kids get sick. So now we live life, we travel with caution but we go to movies at the odd times and we go to stores of course Connor is in my arms so he I out of Any ones reach and knock on wood it's been okay . I don't know the answer but now I can breath if someone comes in my house before I seriously would have a panic attack.
Sending my live to you both hoping the buggies go away

Ps are you going to moms luncheon ??? I hope so I would love to see you there
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The Day I Became A Heart Mother

One day my world came crashing down,
I'll never be the same.
They told me that my baby was sick.
I thought, "Am I to blame?"
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.
I will not give up on this child.
I will listen to your advise.
I will give my son any chance
No matter what the price.
I will learn all I need
To help my baby thrive.
I'll even use that feeding tube,
My child must survive!
Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
As I accept our fate.
When the monitors beep at night,
it serves as my reminder.
How many parents would love that sound,
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my baby's bed.
I watch him sleep for quite a while,
I bend down and kiss his head.
I cry for the parents whose hearts have broken.
I look to You wondering why?
Oh Lord, I just can't know your ways...
no matter how I try.
And yet, I trust you hold his life,
and guide us through each day.
My mind says savor each moment he's here,
but my heart begs, "PLEASE let him stay!"
From pacing the surgical waiting room,
to sitting by his bed.
From wishing for a good nights sleep,
to learning every med.
From wondering, "Will he be alright?"
to watching him reach out his hands.
With every smile my heart just melts,
despite life's harsh demands.
For all who see that faded line.
I look to them and smile.
You see my child is loved so much,
I would face ANY trial.
That scar I trace with my finger
(It's the door to his beautiful heart).
God must have known how much I'd love him
(Just as He loved him from the start).
A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.
Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day....
When I became a "Heart Mother."
- Stephanie Husted
Mommy to Braeden HLHS

Every Heart Has A Story... This is Severin's

March 4, 2010 19 week ultrasound. We were told something was not normal about our babys heart

April 12,2010 Perinatology confirmed Tricuspid Artesia, Hypoplastic Right Heart Syndrome, Transposition of The Great Arteries

April 20, 2010 Fetal echo confirmed everything that "could" have been wrong with Severins heart, was. We refer to this day as "the holy crap day" Diagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too big and his Aorta is too small.

July 7, 2010 Birth of Severin!

July 13,2010 First Open Heart Surgery

Modified Norwood, Damas-Kaye Stansel, Coarch. repair,BT Shunt, ASD created

Nov. 22, 2010 Pre Glenn Heart Cath

Added to diagnosis: Pulmonary Stenosis, and Aorta has a "twist"

November 24. 2010 Second Open Heart Surgery

remove BT Shunt, Glenn Procedure, replaced 80% of his Pulmonary Artery

April 16, 2012 Heart Cath
Stent placed in Left Pulmonary Artery, due to narrowing. Increasing LPA diameter 3 times the size, and making it "normal" size

November 15, 2012 Fontan Day!

Sev ROCKED the Fontan! He was discharged 5 days post op. We have never looked back. He is healthy, growing, and so dang smart! He sees cardiology yearly. And the rest of the time he is a NORMAL little boy!