Cardiology Jan. 14, 2013

Severin met with Dr. Su. It is fun to ask him "Who is your heart doctor?" "dackta Seau" "Who fixes your heart?" "dackta Kahzah, he name AK" This was an AWESOME appointment! I marked "no" for every question; I really have zero concerns for Severin from a heart stand point. Of course I will always worry, but he is really doing great. He takes FOREVER in Xray because he has to stop and chat with everyone and collect stickers from them. There was another family in the waiting area, and he walks right up to the Dad (who had his phone in hand) and asked to play a game. He makes friends everywhere. While we are in clinic he sees his "peeps" and stops to show them his cool new moves- which is usually jumping or galloping like a horse, and the occasional turn in to the dog named Smokey and roll around on the floor and lick things. Oh yes he is Mr. Personality! His SATS were high 90s they read 97 but I don't know if he has ever been 97 in his whole life. He was brave while they put on stickers and made him look like an octopus. He was a bit wiggly for the 2 blood pressures but they were still good. He gets to drop a dose of Lasix- so only once a day for 2 weeks and then off it completely. He may not even need to have a cath in the summer. As always we go at his pace.
Before we left Dr. Su said "look at him" of course I start scanning Severin looking for something I missed, or should notice.. Then he says "this is what you have been waiting for, for 2 1/2 years" This means a lot coming from Dr. Su. I have had a lot of very frank conversations with him. I wondered if what I was choosing for Severin was right. I didn't want to jeopardize his small quanity of life with poor qualtity.
But you know what? He is worth every bit!