4-everQuist: Extra! Extra! Mom wins!!

Friday, December 30, 2011

Extra! Extra! Mom wins!!

So Christmas brought us the sickies. J. has pneumonia, S. has an ear infection,cough, snotty nose and is back on oxygen 24/7, N. escaped with the least bad cough and snotty nose, I have some bronchitis somethin somethin. Needless to say I am thankful Santa brought us a Wii. It has provided some good couch time entertainment.
Here is the funny story for the day: I am NOT a gamer, Johnathen likes to take full advantage of that fact. He continuously "forgets" to tell me how to pay the game. We are playing Mario Kart- at my skill level. I'm doing pretty good. Just tailing Johnathen. Who by the way is Princess Peach driving a motorcyle, because he likes her outfit when she drives the motorcycle. Then we start talking trash. And in the final seconds of the game I PASS JOHNATHEN!!!! Ok so I was 9th place and he was 10th but the most important part is I BEAT HIM!! Idon't know if I will ever let him forget it. All the games played I will remind him of this one and I'm sure only time I beat him.

3 comments:

DjinniDecember 30, 2011 at 7:03 PM
Glad you got a Wii to make those sick times more enduring. Thanks for all of the kind comments on Isaac's page (laughing Warrior). It's nice to be in contact with other heart Mom's who understand my worries. I had a bad day yesterday (as I posted) but I'm doing better today, it was just one of those days that us Mom's get when we worry about our kids too much. I remember hearing many of the same things you are hearing from your son's Cardiologist, when Isaac was three. We were waiting for him to gain weight to have the Fontan. I stress over every surgery, it doesn't get easier for me, it's just different as kids get older and understand more. You are a great Blogger, I haven't been good at Blogging lately, I get busy and sometimes think nobody reads it anyway. Thanks for caring and staying in touch.
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HeidiJanuary 4, 2012 at 4:43 PM
Love it! You keep rubbing it in! And I love all the pics of Severin that is the same trouble we find Logan in constantly!
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Shane and JenJanuary 6, 2012 at 2:23 PM
Oh Man Angee that Sucks So bad! I hope you are all feeling better now! love you lots
Jen Chase
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The Day I Became A Heart Mother

One day my world came crashing down,
I'll never be the same.
They told me that my baby was sick.
I thought, "Am I to blame?"
I don't think I can handle this.
I am really not that strong.
It seemed my heart was breaking.
I have loved him for so long.
I will not give up on this child.
I will listen to your advise.
I will give my son any chance
No matter what the price.
I will learn all I need
To help my baby thrive.
I'll even use that feeding tube,
My child must survive!
Will he need a lot of therapy?
Will he gain the needed weight?
Please God, help me do this.
As I accept our fate.
When the monitors beep at night,
it serves as my reminder.
How many parents would love that sound,
Tomorrow I will be kinder.
As another Angel earns his wings,
I run to my baby's bed.
I watch him sleep for quite a while,
I bend down and kiss his head.
I cry for the parents whose hearts have broken.
I look to You wondering why?
Oh Lord, I just can't know your ways...
no matter how I try.
And yet, I trust you hold his life,
and guide us through each day.
My mind says savor each moment he's here,
but my heart begs, "PLEASE let him stay!"
From pacing the surgical waiting room,
to sitting by his bed.
From wishing for a good nights sleep,
to learning every med.
From wondering, "Will he be alright?"
to watching him reach out his hands.
With every smile my heart just melts,
despite life's harsh demands.
For all who see that faded line.
I look to them and smile.
You see my child is loved so much,
I would face ANY trial.
That scar I trace with my finger
(It's the door to his beautiful heart).
God must have known how much I'd love him
(Just as He loved him from the start).
A heart mom is always a heart mom.
Now wise beyond her years.
For those who have angels in heaven,
Our hearts share in all of your tears.
Every day I will try and remember,
I was chosen for him (and no other).
I will always embrace that beautiful day....
When I became a "Heart Mother."
- Stephanie Husted
Mommy to Braeden HLHS

Every Heart Has A Story... This is Severin's

March 4, 2010 19 week ultrasound. We were told something was not normal about our babys heart

April 12,2010 Perinatology confirmed Tricuspid Artesia, Hypoplastic Right Heart Syndrome, Transposition of The Great Arteries

April 20, 2010 Fetal echo confirmed everything that "could" have been wrong with Severins heart, was. We refer to this day as "the holy crap day" Diagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too big and his Aorta is too small.

July 7, 2010 Birth of Severin!

July 13,2010 First Open Heart Surgery

Modified Norwood, Damas-Kaye Stansel, Coarch. repair,BT Shunt, ASD created

Nov. 22, 2010 Pre Glenn Heart Cath

Added to diagnosis: Pulmonary Stenosis, and Aorta has a "twist"

November 24. 2010 Second Open Heart Surgery

remove BT Shunt, Glenn Procedure, replaced 80% of his Pulmonary Artery

April 16, 2012 Heart Cath
Stent placed in Left Pulmonary Artery, due to narrowing. Increasing LPA diameter 3 times the size, and making it "normal" size

November 15, 2012 Fontan Day!

Sev ROCKED the Fontan! He was discharged 5 days post op. We have never looked back. He is healthy, growing, and so dang smart! He sees cardiology yearly. And the rest of the time he is a NORMAL little boy!